Dr Shakeeb, I have an 21 year old daughter who has speech disability. We tried different types of therapies but nothing helped beyond a point. She is smart but very dependent on us, her parents. She walks slowly and has gained weight as well. She doesn't look into the eye when she's making a conversation but she is very observant of people and surroundings. We are in our 50s and want to make her independent. Should we apply for a disability certificate? How can we try and help her?
Ans: Thank you for sharing your daughter's situation. It sounds like you've been dedicated in seeking help and support for her. Here are some detailed steps and suggestions to further assist her and ensure she receives the necessary support:
1. Disability Certificate:
- Application Process: Applying for a disability certificate is a crucial step. This certificate can officially document her disability, making her eligible for various benefits, schemes, and support systems.
- Evaluation: It will involve a thorough medical and psychological evaluation. Given her symptoms, a professional might assess her for conditions such as Autism Spectrum Disorder (ASD).
2. Vocational Training and Education:
- Local NGOs: Look for non-governmental organizations (NGOs) or institutions nearby that offer vocational training and educational programs tailored for individuals with disabilities. These programs can enhance her skills and increase her independence.
- Specialized Programs: Many NGOs provide tailored programs focusing on communication skills, daily living skills, and specific job training.
3. National Trust Schemes:
- Niramaya Health Insurance Scheme: This scheme offers health insurance coverage for individuals with autism and other disabilities, covering various medical needs without age limitations.
- Other Schemes: Explore other schemes under the National Trust, which aim to provide lifelong shelter, care, and employment for individuals with disabilities.
4. Support Groups and Associations:
- Parent Associations: Joining a parent association group can be incredibly beneficial. These groups offer emotional support, share resources, and provide practical advice from experienced parents.
- Disability Support Groups: These groups can connect you with other families facing similar challenges, and offer workshops, social events, and advocacy support.
5. Legal Guardianship:
- National Trust Act 1999: This act includes provisions for appointing legal guardians for adults with disabilities. This can ensure that your daughter has a designated guardian to make decisions on her behalf if necessary.
- Guardianship Boards: Look into the local guardianship boards or legal advisors to understand the process and ensure your daughter's future security.
Additional Tips:
- Therapeutic Support: Continue exploring different types of therapies. Sometimes, a combination of speech therapy, occupational therapy, and behavioral therapy can yield better results.
- Healthy Lifestyle: Encourage physical activities suited to her abilities to help manage her weight and improve overall health. This could include walking, swimming, or specialized fitness programs for individuals with disabilities.
- Social Skills Training: Work on her social skills gradually, focusing on eye contact, conversation skills, and building confidence in social settings.
By pursuing these steps, you can help create a supportive environment for your daughter that fosters her independence and improves her quality of life. Your proactive approach and dedication will be invaluable in ensuring she receives the necessary support and opportunities for personal growth