MY WIFE WAS DIAGONISED WITH ADULT ONSET SCA AT AGE 69. ALL ALONG SHE HAD GOOD HEALTH , VERY ENERGETIC , REGULAR BLOOD TESTS SHOWING ALL PARAMETERS AT NORMAL LEVELS, ALTHOUGH DUE TO HER BELIEF IN VARIOUS RELIGIOUS RITUALS SHE WAS OBSERVING FAST FOR AROUND THREE DAYS PER WEEK . AFTER SCA EXCEPT INVOLUNTARY MOVEMENT WHILE WALKING , SHE WAS OTHERWISE FINE WITH REGULAR PHYSIOTHERAPY EXERCISES TWICE A DAY. AFTER ABOUT SIX MONTHS SHE GOT FEVER AND HER BLOOD , URINE TESTS REVEALED LOW HOMEOGLOBIN , BLOOD OXYGEN AND UTI AFFECTING CRETANINE ALSO. DESPITE ADMINISTERING ANTIBIOTICS , SHE SUDDENLY HAD DIFFICULTY IN BREATHING AND WAS ADMITTED TO A LOCAL HOSPITAL BUT HOPING FOR BETTER TREATMENT WE SHIFTED HER TO AKASH HOSPITAL DWARKA NEW DELHI ON 6TH OCTOBER . FROM EMERGENCY SHE WAS MOVED TO ICU . ON 11TH SHE WAS DETECTED WITH HOSPITAL ICU ACQUIRED BACTERIAL INFECTION , AND SEPSIS . WITH EACH PASSING DAY HER CONDITION DETERIOIRATED , LOW OXYGEN LEVELS AND LOW BP AND WAS PUT ON VENTILATOR SUPPORT WITH DAILY DIALYSIS DUE TO KIDNEY FAILURE . THEN WE WERE INFORMED THAT HER LIVER HAD ALSO BEEN IMPACTED AND FINALLY MULTIPLE ORGAN FAILURE . SHE BREATHED HER LAST ON 26TH OCTOBER . WAS ALL THIS DUE TO HOSPITAL ICU ACUIRED BACTERIAL INFECTION , POOR ICU PROTOCOL ???

Ans: Namaste!!
I am so sorry to hear about your wife. Lupus is not an easy disease to deal with and I know you all along with her must be dealing with this with pain. I will pray she recovers soon.
Naturopathy is known to do wonders in this field. I suggest you look up good naturopathy doctors in your area and start with changing what she eats first. You can continue with the Allopathic treatment alongside. Everything on our body is interconnected, therefore this one condition is affecting so many other parts of the body. Yoga, pranayam and meditation can cure many diseases of practiced sincerely and regularly. I suggest you start her off on a simple Yogasanas routine asap. Even though it seems almost impossible, I suggest you take her on short walks every single day. Staying close to nature, eating organic and fresh foods, meditating and spending time reading or listening to music will help the body cope with this disease. Anxiety, blood in urine, clinical depression, face rash, flare, headache, joint stiffness, sensitivity to light, swelling, water retention, or weight loss may well be very commonly occurring symptoms for her. Learning as much as you can about lupus and what you can do to feel better. But, talking to your friends and family to help them understand what is happening to your wife’s body will also help. Taking a break from focusing on the disease, and spending some time doing activities you enjoy is highly recommended.

Ans: I fully understand your feeling. It is hard to let go of our loved ones. What you did was right at that moment. With Nor Adrenaline the possibilities of heart rate fluctuation happens. With that fluctuation, one does not treat the readings and change the treatment. More than heart rate it is the circulation reflected through BP needs to be taken care.
Above all her ejection fraction was low to cope this fluctuation. Not to blame the system, soul departing cannot be stopped by any one. Given this circumstances I feel the best has been done